Engagement of People with Lived Experience of Dementia is a new Canadian Consortium on Neurodegeneration in Aging (CCNA) program.
We aim to engage persons with dementia and care partners in CCNA research -not as study subjects, but as collaborators in planning, conducting and communicating CCNA research. In doing so, we believe it will make our research better and more relevant.
Your Role
As a member of the Advisory Group, you will participate in one annual in-person meeting (in Canada) and three video-/tele-conferences during the remainder of the year. You will be compensated for travel expenses and offered a small honorarium for your participation. You will receive training for the role, including a general orientation to health research and the CCNA.
During meeting, you may hear from CCNA researchers and have an opportunity to ask questions and offer your feedback and insights, such as by:
Providing input on research questions and study design
Reviewing study documents
Interpreting data and giving context to results
Assisting with knowledge translation
We are currently seeking new Advisory Group members.
Who Can Apply?
We would like to engage more people living with dementia as well as people who might contribute diverse perspectives (e.g., immigrants and newcomers to Canada, LGBTQIA+ community members, individuals from diverse racial or ethnic identities, Francophones). However, we welcome hearing from all people with lived experience of dementia (including caregivers/care partners, friends and family) who may be interested in contributing to the work of the Advisory Group; please complete or download the form below.
If you have questions, please contact Ellen Snowball at ellen.snowball@uhn.ca.